Jesy Nelson campaigns for muscle disease test for babies
Jesy Nelson, a former member of the British girl group Little Mix, has recently revealed that her twin baby daughters have been diagnosed with Spinal Muscular Atrophy (SMA), a genetic disorder that affects muscle strength and movement. Nelson is now campaigning for a muscle disease test to be made available for babies at birth, in order to detect SMA and other similar conditions early on.
Nelson's daughters were diagnosed with SMA after they began showing symptoms, including muscle weakness and difficulty moving. The singer has spoken out about the importance of early detection and treatment for SMA, and is advocating for a test to be made available for all newborn babies.
SMA is a devastating condition that affects one in 6,000 babies born in the UK. It is caused by a genetic mutation that affects the production of a protein called survival motor neuron (SMN). Without treatment, SMA can lead to muscle weakness, paralysis, and eventually death.
Nelson's campaign is gaining momentum, with many people sharing their support on social media. The singer has also spoken to the BBC about her experience with SMA and her desire to raise awareness about the condition.
Sources
[9] Jesy Nelson campaigns for muscle disease test for babies